Tuesday, June 16, 2015

Labcorp, Where for Art Though/Here Comes the Rain Again...

After and insanely wet (and record setting) spring here in North Texas (NTX), Tropical Storm "Bill" will be making landfall shortly and is expected to drench us with 2-5 inches of rain.  If it was going to happen I wish it would have happened last week.  I need to get my neighbor's grass cut before I hit the road on Saturday and from the looks of things it might be too wet to cut before I leave and that will be bad.  All that water and the heat we have already been seeing (mid 90's each day) will create a humid environment just perfect for the grass to take off.  Good news for the grass seed we just put down but bad news for my grass cutting.

As previously posted, I need to go to Labcorp each month to have blood tests performed to make sure the Riluzole I am taking does not destroy my liver.  Each month a couple of days after the blood is drawn, the results are posted online.  Last month the results never made it online but were sent to my doc so at least he knew what the results were.  After opening a case with Labcorp the results were posted and due to the way the e-mail was phrased I don't think they ever would have shown up had I not contacted them.  Oh, my liver function is still within the normal range, although it did go up a few points.  Nothing to fear.  I can still continue to take my meds.

I also now have my meds send directly from my Insurance company to me every three months.  It is $10 less than the cost of going to the local pharmacy (I use Walmart normally because they are close) and they are shipped free.  The drawback is someone needs to be here to sign for them.  Normally that is not an issue because my wife is home but sometimes that is not always the case.

My wife did some pet sitting last week.  The three legged monster known as "Spunky" spent a week at our place and for the most part was very well behaved. He is an attention fiend and since he did not get as much from us as he normally gets from his owners, he began to act up the last three days he was with us.  He began to whine at night when we put him in his cage (he was fine the first few nights) and then began getting into the potted plants my wife has in the open dining area.  Spunky is now home with his people and our house is back to normal.

Saturday I start my  road trip to visit family and friends on/near the east coast. It is an aggressive itinerary, with stops in 4 states over a 2 week period.  I am staying about a week in WV with mom, visiting family and childhood friends.  Then the following week I am driving to VA to spend a few nights with one of the first people I ever met when I moved to NC.  He and I have been friends as long as we have known each other, which is over 20 years.  I don't get to see him very often but since I have been diagnosed with ALS and he is a good friend I wanted to do everything in my power to stop by and see him at least one more time.

After a short stay in VA, I will cruise down to NC and try to meet up with another friends and former roommate if time permits.  Then I am off to GA to visit a former classmate and coworker whom I have not seen in at least 20 years.  He too, has graciously opened up his home to allow me a good night's sleep while on the road.  Not only is this a money saver, but it is safer and more comfortable. It will be so nice to see everyone again.

My TV watching has tapered off quite a bit with my DVR almost empty with sole exception of the year+ backlog of Cutthroat Kitchen episodes my wife has not watched yet.  I recently started recording "Texas Rising" and a new mini-series on AMC about the American Mob.  It started last night and runs for 8 episodes.

I am quickly losing my love for the Game Of Thrones TV series.  maybe I am just too much of a book purest but the show just does not do anything for me anymore.  I tore through the books at a frenetic pace, much like I enjoyed the first 2-3 seasons of the TV show but now my desire for the show has waned greatly.  It still is visually stunning but the story arcs are not what I want to see.


Tuesday, June 02, 2015

All Appears To Be Good

Back on May 20th I had my 3 month follow-up with my Neuro/ALS specialist (and an intern) to evaluate my condition's progression.  It appears to be a bit of a good news/bad news situation.

The bad news:  My left hand is noticeably worse than it was in February.  This makes typing much harder and very tiring after just a few minutes.  Also my hand cramps up all the time making life even more interesting.

The good news:  They cannot see any obvious degradation in any other part of my body.  I am still swallowing, breathing, and walking normally.  This would appear to be good news as the disease does not appear to be spreading yet.

No one said ALS was fun.


Pictures for reference



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